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Williams Syndrome is a rare genetic condition (estimated to occur in 1/20,000 births) which causes medical and developmental problems. Williams syndrome is a genetic disorder that was first recognised as a distinct condition in 1961. It is present at birth, and affects males and females equally. It can occur in all ethnic groups and has been identified in countries throughout the world.
The Williams Syndrome Association of Ireland (WSAI) was set up in the late 1980s as a support group for families of WS individuals in Ireland. The WSAI provides support to members through annual conferences, social gatherings and the issue of regular newsletters. It also works to make the medical, teaching and other professional groups more aware of the Williams Syndrome condition. This helps to ensure that people with WS are diagnosed at an early age and that they receive the early intervention that is so vital to them.
The Williams Syndrome Association of Ireland was founded in 1987 with 2 family members and held its first Annual General Meeting in September 1989. It became a Registered Charity in 1991 - Registered Charity Number CHY 9654. It is now run by a committee of 9 or 10 people that is elected each year at the Annual General Meeting. This committee consists of a Chairperson, Secretary and Treasurer as well as a number of committee members - usually all parents and siblings of WS children or adults. The committee meets 4 or 5 times each year.
The main aim of the WSAI is "to promote the general welfare of people with Williams Syndrome and to provide practical help and support for people affected by Williams Syndrome and their families."
